Learning About Neurofibromatosis Has Made Me a Better Patient

Last month the Children's Tumor Foundation had asked me to write something about my Neurofibromatosis (NF) experience. Something that could show what life with NF is about, beyond the doctor visits, MRIs and clinical trials. I'd like to share the link to the article I wrote for them. Thank you for reading!

The Children's Tumor Foundation is so much more than a funder of scientific research. They have revolutionized the field of NF research, forging new pathways for one reason: to benefit the millions of people living with NF. #ENDNF

http://www.ctf.org/news/gaining-knowledge-about-neurofibromatosis-empowered-me